LupusNinja


Chronic pain and lupus.

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It’s awesome to have a dog if you need to buy food. 
And yes, he needs a bath and have a meeting with the scissors. Just look at the paw. Haha, poor baby boo! Well, when I have the energy. :)

It’s awesome to have a dog if you need to buy food.
And yes, he needs a bath and have a meeting with the scissors. Just look at the paw. Haha, poor baby boo! Well, when I have the energy. :)

Tagged: doggolden retrieverservice dogloveworking dogslechronic illness

I thought that the day couldn’t get any worse. 
But it could! My bike broke. My lovely old bike. :(
And when me and my friend came to the hospital we had to wait over 30 minutes. Aaaaand! They didn’t knew what tests it was, so it took them about 40 minutes to figure it out. And they said: I don’t know if it’s right, but we’ll try. After that I asked: you know one has to be frozen after? She was gone ten minutes more. 
I was like: and you’re supposed to specialists?!

My joints in the left foot gave up, and the right hip. 
I was so damn irritated!

But anyway we did some shopping while we were in town. And I met another friend! Yes - I do have friends. 
So much fun, we had ice cream and laugh so much. The day was pretty good in the end. 

And I fell asleep as soon I got home.

I thought that the day couldn’t get any worse.
But it could! My bike broke. My lovely old bike. :(
And when me and my friend came to the hospital we had to wait over 30 minutes. Aaaaand! They didn’t knew what tests it was, so it took them about 40 minutes to figure it out. And they said: I don’t know if it’s right, but we’ll try. After that I asked: you know one has to be frozen after? She was gone ten minutes more.
I was like: and you’re supposed to specialists?!

My joints in the left foot gave up, and the right hip.
I was so damn irritated!

But anyway we did some shopping while we were in town. And I met another friend! Yes - I do have friends.
So much fun, we had ice cream and laugh so much. The day was pretty good in the end.

And I fell asleep as soon I got home.

Tagged: lupusslefmlhospitalchronic illness

I’m having so much fun here! I had to wait to take some tests. And later I have to go to the hospital and take some more blood tests, because they can’t take it here. 
I feel like shit, I want to be home in bed and feel sorry for myself. And on Friday I have to get up at five to take the buss to another hospital. Yes, chronic illness is so much fun! 
Please kill me. Please!

I’m having so much fun here! I had to wait to take some tests. And later I have to go to the hospital and take some more blood tests, because they can’t take it here.
I feel like shit, I want to be home in bed and feel sorry for myself. And on Friday I have to get up at five to take the buss to another hospital. Yes, chronic illness is so much fun!
Please kill me. Please!

Tagged: lupusslechronic illnesshospitalfml

Story of my life.

Story of my life.

Tagged: lupusslechronic painchronic illnesssleepy

The two things I love the most: Zwinto and being out in the forest. 

I have been in so much pain, I have been so weak that I can barley walk. 
It was really a struggle to take zwinto out, the clothes felt heavy and caused pain, dizziness, had to hold on to things so I wouldn’t fall. And I was so upset, sad and angry. 
But as always he is so happy, even if he only gets to be outside for ten minutes. 
Thankfully Johan comes home tomorrow so Zwinto will get everything he deserves.

The two things I love the most: Zwinto and being out in the forest.

I have been in so much pain, I have been so weak that I can barley walk.
It was really a struggle to take zwinto out, the clothes felt heavy and caused pain, dizziness, had to hold on to things so I wouldn’t fall. And I was so upset, sad and angry.
But as always he is so happy, even if he only gets to be outside for ten minutes.
Thankfully Johan comes home tomorrow so Zwinto will get everything he deserves.

Tagged: lupuschronic illness

Six days left until I get to see the new doctor. 
All my hopes is fading, it’s always better to expect the worse, then you don’t get disappointed. 

Anyway, the training with the dog has been going really great, big progress!
We met an old lady who walked really strange, and it was dark. 
Usually he would bark like he was going to die. 
But, not a sound! And I was stunned!

Six days left until I get to see the new doctor.
All my hopes is fading, it’s always better to expect the worse, then you don’t get disappointed.

Anyway, the training with the dog has been going really great, big progress!
We met an old lady who walked really strange, and it was dark.
Usually he would bark like he was going to die.
But, not a sound! And I was stunned!

Tagged: chronic illnesschronic painlupusslegolden retrieverdog training

Living with a chronic condition, you experience loss in two ways – you mourn the way you used to live your life, and you worry about living life in the future.

- Laughing with Mr Lupus

Tagged: chronic illnesschronic painlupussle

Tomorrow my new bed is coming!
I spend so many hours of my life in the bed, so I felt that I deserved a new good bed.

Oh I can’t wait!
The bed I have now I old and very soft, this one is hard but soft in the same time. 
Then our 180’ is complete. 

I feel very happy!

Tomorrow my new bed is coming!
I spend so many hours of my life in the bed, so I felt that I deserved a new good bed.

Oh I can’t wait!
The bed I have now I old and very soft, this one is hard but soft in the same time.
Then our 180’ is complete.

I feel very happy!

Tagged: bedlupustime in bedchronic illnesschronic painhappiness

Oh, I’m sorry for this bad update sweethearts, I started playing guild wars 2, and that is the only thing in my mind… 
My body don’t like it as much, I’m stiff and my hips hurts well, like hell! My back is hurting. Haha, playing is bad for you, and the headache I get. Huhu.
Anyway I love this game!

Oh, I’m sorry for this bad update sweethearts, I started playing guild wars 2, and that is the only thing in my mind…
My body don’t like it as much, I’m stiff and my hips hurts well, like hell! My back is hurting. Haha, playing is bad for you, and the headache I get. Huhu.
Anyway I love this game!

Tagged: chronic illnesschronic painlupusme

Too tired to get some painkillers. Headache. So I’m waiting for my bf to get me some. Yes, hihi.

Too tired to get some painkillers. Headache. So I’m waiting for my bf to get me some. Yes, hihi.

Tagged: lupusslechronic painchronic illnesspainheadache