Living with a chronic condition, you experience loss in two ways – you mourn the way you used to live your life, and you worry about living life in the future.
- Laughing with Mr Lupus
Tomorrow my new bed is coming!
I spend so many hours of my life in the bed, so I felt that I deserved a new good bed.
Oh I can’t wait!
The bed I have now I old and very soft, this one is hard but soft in the same time.
Then our 180’ is complete.
I feel very happy!
Oh, I’m sorry for this bad update sweethearts, I started playing guild wars 2, and that is the only thing in my mind…
My body don’t like it as much, I’m stiff and my hips hurts well, like hell! My back is hurting. Haha, playing is bad for you, and the headache I get. Huhu.
Anyway I love this game!
Too tired to get some painkillers. Headache. So I’m waiting for my bf to get me some. Yes, hihi.
My skin hurts. Well it is not the skin.
I know what it is called in swedish.
You can’t touch me it hurts. It really hurts.
Lupus isn’t causing all my pain, I thought I had fibro, well I don’t.
My problems comes from the nerves.
So anyway, it hurts in my neck, when I lie down on my pillow :’(
All my pain don’t come from lupus. My nerves are fucked up. And there is no treatment for it, cus I’ve tried them all.
He said that I should not exercise too much, that could raise the pain, forever.
And, if people touches me too hard, the pain is there, and so on.
shit ignorant twats say
Every variation of ‘you don’t look sick’ makes me want to throw things and cry.
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