LupusNinja


Chronic pain and SLE.

Observing Life, instead of playing a part
Day by day, literally breaks her heart.

Ask me about lupus/sle! :)

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Story of my life.

Story of my life.

Tagged: lupusslechronic painchronic illnesssleepy

Six days left until I get to see the new doctor. 
All my hopes is fading, it’s always better to expect the worse, then you don’t get disappointed. 

Anyway, the training with the dog has been going really great, big progress!
We met an old lady who walked really strange, and it was dark. 
Usually he would bark like he was going to die. 
But, not a sound! And I was stunned!

Six days left until I get to see the new doctor.
All my hopes is fading, it’s always better to expect the worse, then you don’t get disappointed.

Anyway, the training with the dog has been going really great, big progress!
We met an old lady who walked really strange, and it was dark.
Usually he would bark like he was going to die.
But, not a sound! And I was stunned!

Tagged: chronic illnesschronic painlupusslegolden retrieverdog training

How can anyone live like this?
I have no idea how to handle this pain, it’s worse than before and I feel like I’m slowly dying inside. 
I swear, it would be better to be dead.

How can anyone live like this?
I have no idea how to handle this pain, it’s worse than before and I feel like I’m slowly dying inside.
I swear, it would be better to be dead.

Tagged: lupuschronic pain

Oh, I have a new pain! How wonderful.
My life sucks.

Tagged: lupusslepainchronic pain

Muscle pain causes tension - tension causes more pain.

This is me right now. I can’t sleep.
The pain takes over, I’m hoping the painkillers will work; but I often can’t sleep when I’ve taken them.

So…
1: Painkillers, I maybe just maybe can sleep. Or get nausea, vomit, itchy nose, feel high, depressed etc etc.
2: Pain, no sleep.

Oh I take number one! The roulette!

Tagged: painkillerstramadolchronic painpainlupussad

Im so sorry my spoonies that you’re sick!;(

Im so sorry my spoonies that you’re sick!;(

Tagged: chronic painslefibroi love youmine fellow spoonies

Source: lupusninja

Living with a chronic condition, you experience loss in two ways – you mourn the way you used to live your life, and you worry about living life in the future.

- Laughing with Mr Lupus

Tagged: chronic illnesschronic painlupussle

Swallowing an actual bitter pill

thegutsygeneration:

Haha, that’s how I look!

Tagged: pillschronic painlupussle

Source: livingbeyondwithguts

So this weekend I’m really trying to get my guardian to lvl 40.
My friend said if I really play all weekend and don’t do nothing else I would be able to get there.
I don’t want to disappoint him, he is like pro. My god!

Well, I didn’t play all day but almost. Now I’m lvl 13 and I have only died five times, and that is amazing cuz I ALWAYS dies. ;)

I had to quit cuz my stupid body (that I hate) told me that I needed painkillers and sleep.
I don’t play so well on painkillers :p

Tagged: gw2guardianguild wars 2lupuschronic painslehate

Tomorrow my new bed is coming!
I spend so many hours of my life in the bed, so I felt that I deserved a new good bed.

Oh I can’t wait!
The bed I have now I old and very soft, this one is hard but soft in the same time. 
Then our 180’ is complete. 

I feel very happy!

Tomorrow my new bed is coming!
I spend so many hours of my life in the bed, so I felt that I deserved a new good bed.

Oh I can’t wait!
The bed I have now I old and very soft, this one is hard but soft in the same time.
Then our 180’ is complete.

I feel very happy!

Tagged: bedlupustime in bedchronic illnesschronic painhappiness