LupusNinja


Chronic pain and lupus.

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Muscle pain causes tension - tension causes more pain.

This is me right now. I can’t sleep.
The pain takes over, I’m hoping the painkillers will work; but I often can’t sleep when I’ve taken them.

So…
1: Painkillers, I maybe just maybe can sleep. Or get nausea, vomit, itchy nose, feel high, depressed etc etc.
2: Pain, no sleep.

Oh I take number one! The roulette!

Tagged: painkillerstramadolchronic painpainlupussad

Im so sorry my spoonies that you’re sick!;(

Im so sorry my spoonies that you’re sick!;(

Tagged: chronic painslefibroi love youmine fellow spoonies

Source: lupusninja

Living with a chronic condition, you experience loss in two ways – you mourn the way you used to live your life, and you worry about living life in the future.

- Laughing with Mr Lupus

Tagged: chronic illnesschronic painlupussle

Swallowing an actual bitter pill

thegutsygeneration:

Haha, that’s how I look!

Tagged: pillschronic painlupussle

Source: thegutsygeneration

So this weekend I’m really trying to get my guardian to lvl 40.
My friend said if I really play all weekend and don’t do nothing else I would be able to get there.
I don’t want to disappoint him, he is like pro. My god!

Well, I didn’t play all day but almost. Now I’m lvl 13 and I have only died five times, and that is amazing cuz I ALWAYS dies. ;)

I had to quit cuz my stupid body (that I hate) told me that I needed painkillers and sleep.
I don’t play so well on painkillers :p

Tagged: gw2guardianguild wars 2lupuschronic painslehate

Tomorrow my new bed is coming!
I spend so many hours of my life in the bed, so I felt that I deserved a new good bed.

Oh I can’t wait!
The bed I have now I old and very soft, this one is hard but soft in the same time. 
Then our 180’ is complete. 

I feel very happy!

Tomorrow my new bed is coming!
I spend so many hours of my life in the bed, so I felt that I deserved a new good bed.

Oh I can’t wait!
The bed I have now I old and very soft, this one is hard but soft in the same time.
Then our 180’ is complete.

I feel very happy!

Tagged: bedlupustime in bedchronic illnesschronic painhappiness

Working dog!
And tonight it’s laundry night. I just hope I have enough energy! :)

Working dog!
And tonight it’s laundry night. I just hope I have enough energy! :)

Tagged: dogworkingcutegoldenlaundrysundaylupusslechronic pain

Oh my. 
The watch says; 12:57
I still haven’t slept at all. 

I had so much pain in my stomach that I threw up and wanted to die. 

I think I give up, time for some painkillers and hope for the best. 

I would be thankful if someone could be adorable and give me a spoon. 
I have none left for today.

Oh my.
The watch says; 12:57
I still haven’t slept at all.

I had so much pain in my stomach that I threw up and wanted to die.

I think I give up, time for some painkillers and hope for the best.

I would be thankful if someone could be adorable and give me a spoon.
I have none left for today.

Tagged: lupuschronic painnerve painslespoons

Zwinto did take his time outside, but I don’t have the heart to not walk him before I almost fall asleep, I’m scared too get an hangover since my fiancé is at work. Sometimes I don’t take painkillers when he ain’t home. Just in case.
I just wanted to sit or lay down in the snow and drink ten liters of water, but if I drink too much I will throw up.

My hips hurt, I’ve been in bed since Saturday/Sunday I think. It’s nice here. And the cat and dog of course. I think my fiancé where home too.
The memory isn’t the best right now.

I just want to be abel to do things.
I can’t believe it’s been seven years this year since I lost my ability to do whatever I wanted to.
Thanks to lupus and the pain.
It took time to get a diagnose on what is causing the pain, I don’t know how many doctors who have ignored me. I have found some doctors who where awesome, but they left of course.
So this nervepain is hell.
And I got eczema 2011, it started small and escalated but finally I’m meeting a specialist soon! :D

I really whine a lot today!
Well it feels better to just write and share. You don’t have to read it.

I just want to break down and cry.

Tagged: chronic painlupuspainhellsadnesslonley

My pain is real
Its as real as I can feel it.
It affects me inside and out.
 
Each day I have to live with it.
Its so real inside me.
I have learned to live with it.
Day after Day.
Month after month
Year after year.
Sometimes it angers me.
Other times it grounds me.
It makes me appreciate the small things in life.
Other times it makes me sad.
Its something I don’t wish on anyone.
Its hard to explain to someone appreciate what you have.
Not living with it you cannot understand.
The only thing I can say is I miss the life without pain.
Now, those moments of no pain I wonder where it is.
Its crazy to feel this way, but I do.
My pain is real and so is my feelings from it.
Feeling the pain day after day is like a long lesson in life.
Appreciate the small things in life.
A smile brings joy to my heart each day.

My pain is real

Its as real as I can feel it.

It affects me inside and out.

 

Each day I have to live with it.

Its so real inside me.

I have learned to live with it.

Day after Day.

Month after month

Year after year.

Sometimes it angers me.

Other times it grounds me.

It makes me appreciate the small things in life.

Other times it makes me sad.

Its something I don’t wish on anyone.

Its hard to explain to someone appreciate what you have.

Not living with it you cannot understand.

The only thing I can say is I miss the life without pain.

Now, those moments of no pain I wonder where it is.

Its crazy to feel this way, but I do.

My pain is real and so is my feelings from it.

Feeling the pain day after day is like a long lesson in life.

Appreciate the small things in life.


A smile brings joy to my heart each day.

Tagged: lupuspaina day without painchronic pain